Dravet syndrome

One in every 20,000 to 40,000 children has Dravet syndrome. Dravet syndrome seizures are hard to control and often resistant to traditional epilepsy medi

Dravet Syndrome

Fever and epilepsy. When it comes to epilepsy and fever, either Febrile Seizures or Dravet Syndrome are usually the most prominent topics on our blog. However, in addition to these syndromes, there…

“On the great days our community has a saying: ‘Not today, Dravet.’ On those days, we declare that Dravet and all the other stuff that comes with it is not winning. We celebrate them, and we hold onto that hope to push us through the tough days.” Powered by Ovid Therapeutics

A mother deserves a day off to care for a sick child or sick parent without running into hardship - and you know what, a father does, too. It's time to do away with workplace policies that belong in a 'Mad Men' episode.

What is Dravet Syndrome?

Primary endpoint achieved, demonstrating a statistically significant reduction of seizures from baseline compared to placebo (p=0.0007) in the combined...

Dravet syndrome (DS) is a neurodevelopmental genetic disorder caused by mutations in the SCN1A gene encoding the α subunit of the NaV1.1 voltage-gated sodium channel that controls neuronal action potential firing. The high density of this mutated channel in GABAergic interneurons results in impaired inhibitory neurotransmission and subsequent excessive activation of excitatory neurons. The syndrome is associated with severe childhood epilepsy, autistic behaviors, and sudden unexpected death…

....Try watching it for several minutes while you wait for the ambulance to arrive....

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