I'm a philosopher with a specialization in bioethics. My work is at the intersection of policy and practice. It is grounded in a deep commitment to public education, engagement, and empowerment, as well as a strong desire to âmake the powerful care.â I maintain that âthe human genome belongs to us all. Itâs something we have in common, and so we all have the right to have a say.â I believe the pivotal question that we all need to ask is âWhat kind of world do we want to live in?â Once we have an answer to this question, we can meaningfully address the more pointed question, âWill CRISPR technology help us build that world?â
Somewhat paradoxically, this treatise against genetic enhancement starts with the case of a deaf couple who want to have a deaf child.
This is a case I often discuss in exploring the difference between disease, disability, and diversity. Following on from this case description, Sandel asks, âIs it wrong to make a child deaf by design?â And what if the desired trait was not deafness but height, athletic prowess, health, or intelligence, and the aim was to gain a competitive advantage?
Would your answer be the same? In the pages that follow, Sandel builds a case against âreengineering our natureâ grounded in an ethic of giftedness (i.e., a reverence for life as a gift).
He eschews the drive to mastery and insists that â[t]o appreciate children as gifts is to accept them as they come, not as objects of our design, or products of our will, or instruments of ourâŚ
"Sandel explores a paramount question of our era: how to extend the power and promise of biomedical science to overcome debility without compromising our humanity. His arguments are acute and penetrating, melding sound logic with compassion." -Jerome Groopman, author of How Doctors Think
Breakthroughs in genetics present us with a promise and a predicament. The promise is that we will soon be able to treat and prevent a host of debilitating diseases. The predicament is that our newfound genetic knowledge may enable us to manipulate our nature-to enhance our genetic traits and those of our children. Although most people findâŚ
Iâve always been fascinated by the quest to understand how nature works and to find patterns amid complexity. This drew me towards physics, which seemed unparalleled in its ability to uncover general rules. In contrast, biology seemed merely descriptive, and despite a fondness for wildlife, I stayed away from the subject in school. It turns out, however, that physics and biology are perfect companions; a whole field, biophysics, explores how physical principles are central to the workings of living things. I became a biophysicist, researching topics like the organization of gut microbes and teaching and writing about biophysics more broadly, at scales from DNA to ecosystems.
What does DNA have to do with education, social justice, income inequality, and other weighty topics? Iâve never read anything that makes such a compelling case that the modern revolution in genetics should impact how we structure society as much as it impacts how we treat disease. First, Harden presents wonderful, accessible descriptions of the current state of genetics, including how we know what we know. Genes have a huge impact on life outcomes.
Harden firmly believes that it would be a mistake to sweep genetic research under the rug for misguided but well-meaning reasons; this seems obvious, but it is radical in current social science. Harden explains that taking genetics seriously has surprising consequences for what we consider a fair society; we shouldnât mistake being genetically lucky for being good.
The book is controversial, and I certainly found myself disagreeing with some of Hardenâs conclusions while at the sameâŚ
A provocative and timely case for how the science of genetics can help create a more just and equal society
In recent years, scientists like Kathryn Paige Harden have shown that DNA makes us different, in our personalities and in our health-and in ways that matter for educational and economic success in our current society.
In The Genetic Lottery, Harden introduces readers to the latest genetic science, dismantling dangerous ideas about racial superiority and challenging us to grapple with what equality really means in a world where people are born different. Weaving together personal stories with scientific evidence, Harden showsâŚ
